“Fiona has a feisty spirit and never lets anything stand in her way. She always tries her hardest and is determined to not let anything stop her.” Anne-Marie describes her 8 year old daughter with well-deserved pride and here at Active Hands we love reading about our customers’ inventiveness and determination.
Fiona is 8 years old and loves gymnastics, ballet and tap. She was born missing fingers on her right hand but has not allowed this to limit her ambitions. Fiona has been taking gymnastics classes for 5 years. Her “bouncy personality” and natural flexibility seemed a great fit with gymnastics training, with the bonus that it offered the chance to strengthen both sides of her body. This year she began to compete with the YMCA gymnastics team.
Keen to keep in touch with resources and support available for those with limb difference, Anne-Marie uses the Lucky Fin Project website and it was through a post from their founder, Molly Stapleman, that Anne-Marie discovered Active Hands’ Limb Difference gripping aid.
“I love love love the grip. It’s amazing. I really liked that the grip was created specifically for someone born with a limb difference. There is not much that Fiona can’t do, but there are times when she has to figure out her own way to do things. A perfect example of this is her routine on the gymnastics bar – she is finding her own way of doing her chin up pullover and cast back hip circle – and your grip is the perfect tool.”
Fiona continues to make great progress in gymnastics and her gripping aid has “made a big difference.” It is the first time she has been able to hang with the full weight of her body from any bar and so the gripping aid is enabling her to strengthen muscles that she couldn’t previously train due to her limb difference. Anne-Marie explains, “I have seen a big difference in her arm strength in just the few weeks we have been using it.”
Having got to grips with her limb difference aid in training, Fiona is excited to test it out in competition this weekend. She also has plans to use her gripping aid when kayaking and paddleboarding with her family: and we have a feeling that this determined young lady will go on to find many more adventurous uses for it!
Our specifically designed Limb Difference gripping aid only launched in September last year and so we were especially pleased to hear from Fiona and her mum that it is already making such a difference. If you have limb difference affecting your hands, check out our gripping aids and range of other products at activehands.com and see what you can achieve.
As a child, Daniel was a keen BMX rider and enjoyed the thrill of competing. His achievements came to an end after nerve damage left him unable to hold the handlebars. 30 years later, Daniel has rediscovered his passion, with the help of Active Hands, and is now fulfilling his childhood ambitions.
“Hello, my name is Daniel Steele. I’m 49 years old and I’m from Nashville. I’d like to share a story with you. In my youth, up until around 16 years old, I was a competitive, die hard, bicycle rider. In the discipline of BMX, I travelled the country attending BMX races and at one point, was ranked number 3 in the state of TN (more on that later). Around the age of 16 I sustained some nerve damage, severely limiting the use (grip) of my right hand. I was no longer able to compete in cycling.
Last year, after a chance encounter at the same BMX track that I raced on as a child, I ran into a pair of brothers that basically (off and on) never stopped racing. The conversation turned into “You should get back into the sport.” I explained my situation with my hand and was asked if I had ever looked into devices for people with disabilities? I said that I had not, but that I had even tried things like cutting up belts to attach my hand to the bicycle. Well, after some research, I stumbled across Active Hands and ordered the General Purpose gripping aid.
When my gripping aid arrived I took it to the track to try out. I cried the first time. I was able to do things that I have not been able to do, in over 30 years!
Just for kicks (and possibly to fulfil childhood dreams), I decided to race BMX again; after being away from the sport for over 30 years and at 48 years old! Well, in my first year back at BMX (2016), I ended up ranked #3 in the state of TN! This year (2017), I have won 3 international races, finished 3rd and 5th at others AND finished #2 in the state of TN (even after missing three months with a broken collarbone)!
I have been given a second chance at BMX, partially due to Active Hands. What a great product, not just for what it allows one to do, but for the possible dreams it allows to be fulfilled.”
Daniel has rediscovered his love of BMX biking and, with a little support from Active Hands, is achieving beyond his expectations! His story is so encouraging; even activities that seem lost may well be achievable with the right support. If you have a hobby or passion that you have been missing, take a look at our range of products and see if 2018 can be the year you get back to doing what you love.
I first began talking to Tony in December of 2015; he had recently purchased some Active Hands gripping aids and was interested in picking my brains about my life with spinal cord injury, the abilities I had regained, and how I used my Active Hands aids in everyday life. Through our interactions and via social media, I have seen just how far Tony has come in the last two years and the ever-increasing number of exercises he is able to do using his Active Hands aids. When I contacted him recently to get some information with which to base this article on, I did so expecting a few lines about his life, his injury and his progress. What I got was an extremely open and honest account of life with a spinal injury, the emotional effects it can have on a person, and how the right attitude and outlook can make all the difference.
This is Tony’s story:
Originally from a small town in central Texas, Tony had always been passionate about keeping fit and active; with hobbies such as scuba diving, hiking, motorbike riding, and home remodelling. On top of all that, he was a martial artist of some 30 years who had left his full time job in order to follow his dream of owning and operating an Academy in his native state of Texas. At the time of his injury however, Tony had relocated to Seattle, WA, where he planned to open a new Academy once he had furthered his knowledge of Brazilian jujitsu! In the meantime, he was working for Lowe’s home improvement store and it was whilst at work one fateful day in 2015 that Tony’s life changed forever.
“You know it’s crazy that a lot of things in your life can happen to you and you can only remember about the time it happens. But when something that is as catastrophic as this happens you can remember the date and the time like it was yesterday.”
Tony was helping transport a 400lb gazebo, which had been stacked onto a utility dolly, to a truck for delivery. As he and his co-workers leaned the dolly back, the weight of the box took over, causing it to topple and strike Tony on the head. It only fell about a foot at the most before hitting him, however the weight of the box and force of the impact were enough to push his chin down with such severity that it broke his neck at C4 level.
Moments later, all he could feel were his head and shoulders on the floor and all he could move was his left arm. He knew the injury was bad, really bad, but he distinctly remembers managing to stay calm until the paramedics arrived and he was transported to Harborview Trauma Hospital.
“I just remember saying ouch and the next thing I knew the box and dolly were laying on top of me. I just collapsed like a ragdoll. The next thing I knew they were picking it up off of me telling me to crawl out from under it. I knew at that moment that I was paralyzed.”
The next thing he knew, he was waking up in ICU surrounded by tubes and monitors, unable to speak or move his hands, and at that moment he did begin to get worried and afraid. He spent three weeks under heavy sedation in ICU before moving to the rehab ward; however in the remaining seven weeks before discharge, most of his physiotherapy took place in bed, having developed a pressure sore whilst in ICU. Fortunately, throughout all this time and beyond, he was surrounded by his siblings and the fantastic set of friends he had made during his short time in Seattle, and Tony is the first to admit that without them “I don’t know what I would’ve done”.
Upon discharge, Tony was forced to move into a skilled nursing facility as there was no feasible way he could move back into his multilevel house. It was around this time that a realisation kicked in for Tony, that life as he knew it would never be the same…
“For the first time in my life I believe I truly felt lost. Not knowing what to do next. All my life I always felt in control, but now I didn’t feel like I had a handle on anything. Having to rely on other people for everything. Having the mind of an adult but the needs an infant. Believe me when I say that is the worst feeling I have ever had in my life.”
However, rather than let these feelings overwhelm him and cause him to fall into depression and self-pity, Tony instead decided to fight back, grab the bull by the horns and put all his effort into his daily physio and occupational therapy.
Upon arriving at the facility, Tony was still very weak, only able to lift his right arm a few inches whilst slouched in his chair. During these early stages, his rehab mostly consisted of using ankle weights on his wrists and working on his tenodesis. However, as Tony began to regain strength and movement, he soon required heavier weights but was unable to physically grip dumb-bells and found it extremely frustrating having to get them bandaged to his hands every time. This is when, following some online research, he came across Active Hands; and after watching the gym workout video Tony knew these were what he needed to “push [his] strength to the next level”.
“I ordered them just as soon as I got through watching the video… I can’t thank Active Hands enough for making such a great product.”
After a year of building up his strength at the skilled nursing facility, Tony was discharged and moved into his own apartment; giving him a huge feeling of independence but at the same time filling him with nerves, as spending so long in hospitals and nursing facilities has a tendency to somewhat institutionalise a person, something I can certainly attest to! However, his initial nervousness soon turned to excitement and after a month of settling in, he began his outpatient therapy at a facility called Pushing Boundaries, a facility he still frequents to this day, getting put through his paces three times a week.
Pushing Boundaries has certainly lived up to its name in Tony’s case, as in conjunction with his Active Hands gripping aids, they have pushed him to his limits, enabling him to engage in every kind of arm-related exercise imaginable and helping him to regain a level of strength and movement that appeared lost initially. He uses his gripping aids every time he visits Pushing Boundaries and they’re showing no signs of wearing out. In fact, the facility loved his Active Hands aids so much that they purchased several pairs that they use with their clients every day!
“I put [the gripping aids] through a beating and I mean a beating because I also use them as boxing gloves. Not only do I use at the gym but at the house also holding a broom, vacuum cleaner. The summer is coming on, it will be exciting to see what I can use them for outside.”
Fast forward to the present day, and when he’s not working out at the gym, Tony can be found caring for the bonsai trees he has began to collect; his positive outlook and rugged determination to rebuild his life, showing no signs of abating. His sole focus remains his rehabilitation, and also wearing out his Active Hands equipment – good luck with that! His ever increasing strength, abilities and levels of independence have resulted in an overall increase in self-confidence. He now feels more at ease when using a manual wheelchair and has set himself the goal of eventually using it full time. Another future goal is to get back behind the wheel and start driving again, something I think every wheelchair user will agree is wholly liberating and opens up a whole world of new possibilities!
As far as dreams are concerned, Tony would love to get back in the water and scuba dive, as well as work out in the yard; both completely achievable. However, his main focus at present is spending more time on the mat, teaching martial arts from his chair; something he describes as more of a way of life than anything else.
“When a person has a strong sense of confidence there’s nothing that they can’t achieve.”
As far as advice he would give to others in a similar position, Tony states that after going through a life changing injury such as this, it is easy to fall into a shell; but that you must resist this temptation, seek out help and don’t try to take everything on alone. Despite doctors telling him that things got easier after the first year, Tony found that things got tougher; as the first year was so taken up with hospitals and recovery that he didn’t have time to really sit and process the full extent of what had happened and the long, hard journey that lay ahead. Tony knew he had two options: Either allow himself to sink into self-pity or get up and fight.
Tony’s martial arts background meant that he was used to having mentors, and so he took a similar approach with his spinal injury, seeking out people both locally as well as on social media and SCI forums. Meeting with and speaking to a wide variety of people who were either personally affected by spinal cord injury or professionally involved with it provided a huge boost to Tony, letting him know he was not alone in this and giving him advice, ideas, goals and a positive outlook for the future.
To me, Tony exemplifies the never give up, can do attitude. To come so far, both mentally and physically, in such a short time and after such a serious injury is a true credit to the human spirit. With his drive, determination and positivity, I have absolutely no doubt that Tony will not only get stronger and more able, but will continue to craft out a successful, fulfilling life for himself, and we here at Active Hands are proud to have been able to play a small part in this.
In the meantime, I’ll leave you with the five motivational sentences that Tony created and pinned to his wall, where he can see them every morning when he wakes up:
- I will begin every day with a positive thought.
- I will attack each day with tenacity.
- I will overcome all obstacles that lay before me.
- I am always moving forwards; mind, body and spirit.
- I will end each day reviewing my successes no matter how small.
Ben Clark is the man behind the YouTube channel ‘AdaptToPerform’ and head of strength, conditioning and sports science for a performance swimming club, working with some of the country’s best swimmers. This month, we’ve been chatting to him about his work, how and why he started his channel and what he hopes to achieve, for himself and others.
In 2010, Ben ran into the sea, “Baywatch style”, and dove into a wave where the water was shallower than he expected. He hit his head and broke his neck, resulting in paralysis from below the chest, including his hands. Drawing on his 10 years of experience as a professional swimmer, he was determined to get through his recovery with physical and mental strength. “Knowing already how to deal with failure etc massively helped me.”
Keen to make the most of the wealth of information on the spinal unit, it wasn’t long before Ben was in the gym and looking for ways to regain his strength. It was here that Ben came across Active Hands gripping aids. “I thought they were a great yet simple design and over the years have found how well made and durable they are!”
Once out of the unit, Ben continued to enjoy fitness and soon decided to start his YouTube channel. “I’ve always had an interest in sports, health and fitness and getting to share my knowledge is very rewarding.” Through his social media channels, Ben aims to, “adapt workouts, nutrition, advice, motivation for any and all situations” so that working out and staying fit is accessible for all.
Active Hands’ range of gripping aids are instrumental in enabling Ben to workout in a regular gym, without the need for specialist or adaptive equipment. Using a combination of the General Purpose, Looped Exercise Aids and D-Rings, Ben’s workouts are varied and challenging.
“When I first started out I just had the [General Purpose] aids. These are great and were the perfect starter. After a while I got the looped exercise aids. These were a great addition. Taking the weight off my hands and into my wrists for cable machines meant I had more control and [was] able to step up my routine. The D-rings are a new addition but a welcome one. The added durability is really good. I still use all 3 [gripping aids] and 7 years later the gloves still look good! [I] put them through some serious abuse!”
Ben posts workout videos, hints, tips and inspirational photos to his instagram, facebook and YouTube channels and is gaining followers from all over the world.
“I just believe life is for living. To some exercise might seem pointless or just for looks. But for me it gives a sense of purpose and allows me to live my life to the full! You get both a rush of endorphins and a meditative effect. You basically can’t lose!”
So what’s next for Ben? Right now, he is working on qualifications to support his work. He recently passed level 1 swim coaching and is preparing for level 2. He is also completing his personal trainer qualifications with the aim of enhancing his work with the swimming club and also his workout videos.
To follow Ben, find him on YouTube, facebook, instagram or twitter under ‘AdaptToPerform’.
Ben’s videos are fantastic examples of what can be achieved, in partnership with Active Hands gripping aids, without the need for a specialist gym or adaptive equipment. With a little bit of knowledge, some motivation and a gripping aid or two in your bag, any gym is accessible to you.
If you would like to share your pictures or videos of your workouts, we’d love to see what you’re up to. Send them to email@example.com and let’s spread the word!
Squirrelling away in our office and factory, our team have been busy designing, testing and refining a brand new gripping aid and we are thrilled to now be able to present it to you.
Alongside our gripping aids, we also run a bespoke design service for those with very individual needs and it was through this service that we were contacted by Karen. Karen has limb difference that affects her fingers and hands and was looking for a gripping aid that would enable her to vary her gym routine by giving her access to a wider range of equipment. As our General Purpose aids work by pulling fingers onto the item to hold it, Karen had found it didn’t work effectively enough for her. Over time, several other customers contacted us with limb difference and we began to see that this bespoke aid we were developing would be of benefit to a far wider audience.
These first few customers who had worked with us through the bespoke service, continued to help us to develop the aid and to test it at home, in the gym and out and about. Their feedback has enabled us to refine the gripping aid and to produce what we think is a fantastic gripping solution.
The Limb Difference gripping aid is designed for users who have a limb difference affecting their hands or fingers. This may include those with dysmelia (conditions from birth), or those who have sustained a limb difference through amputation, injury or illness later in life. The gripping aid is perfect for those who have some or all of their fingers, or parts of their hand, missing. As long as you have at least some widening at your wrist, our grip should work for you (A wider section of the wrist is required as an anchor point to transfer the pulling force to when using the gripping aids). To see clearly if the Limb Difference gripping aid would be right for you, click here to see our size guide.
Karen has now been using our Limb Difference gripping aid for some time in her gym workouts.
“While I have used the TRX straps in my workout – usually one or two moves interspersed with other activities – I have never done an entire TRX workout/class. Having the Active Hands product gave me the confidence to TRY it!
This morning we had a tricep move, our backs to the anchor, and I didn’t need the strap. However – after three sets my hand and wrist was going into fatigue. I put the strap on looking for support – and was able to finish the set.
I was surprised how much support the strap gave to my wrist – and to my hand – even though I wasn’t gripping. This was something I had not even considered using the product for.
This experience reminded me again – to try the gripping product for various activities, not just the obvious ‘I can’t hold something’.”
Karen liked the Limb Difference aid so much and was so keen to help us develop it that she sent us several videos and emails telling and showing us what a difference it has made to her and the possibilities it has opened up for her:
“I was never able to progress past 7lb dumbbells- and that was rigging up homemade straps to help hold it. This week I progressed to 20lbs on upright row dumbbells, squatting and dead lifting a barbell with 20lbs on it. So – this little strap has opened a whole new set of goals and possibilities!”
Sarah Baptist is an occupational therapist with a hand disability (see photo below). This is how the limb difference aid has made an impact on her gym workout:
“The aid has provided me with additional confidence when using new pieces of equipment requiring two hands, I now have a larger variety of machines I can use at the gym. Having a choice makes all the difference when you’re bored of the same gym routine because it’s your only option.”
Rufus is a 9-year-old boy with a limb difference that means he is missing all fingers on his right hand. Like most 9-year old boys Rufus wanted to be able to ride his bike, but he was unable to hold onto the handlebars.
“This aid gave me confidence when riding my bike, it let me hold the handlebars with both hands at the correct length.”
The limb difference aid consists of a strap that secures around the wrist with Velcro, a palm strap and a larger strap that goes over the back of the hand. A large plastic ring attached to the end of each of the straps allows those with both hands affected to secure the aid with a single finger or by using teeth. Each strap is lined with neoprene for comfort and to reduce slippage.
The limb difference aid removes the need for specialist or adapted equipment. The grip is given back to the users hand rather than having to have a prosthetic or adapting all of the equipment you wish to use. This means that you could access, for example, a high street gym and use their standard equipment. The aid is ideal for use during workouts (and with that in mind, is fully machine washable at 40°C), but can also be used to grip DIY equipment, kitchen implements or gardening tools.
If limb difference is holding you back from an active and independent lifestyle, take a look at our new Limb Difference gripping aid and let us help you to ‘get a grip’.
Yemina is an active, fun and smart twelve year old from Canada who loves to read or hang out with friends. She also has cerebral palsy which affects all of her movement and her level of independence. Her mum, Shoshana, explains that Yemina’s cerebral palsy makes any activity involving movement a challenge, but particularly those involving hand control. “She has a lot of extra movement through her arms and hands when she tries to use them.” This extra movement means that pushing buttons, grasping items or maintaining a grip of them can be really challenging for Yemina.
For years, Yemina and her family experimented with different gripping aids, buying from companies and even inventing their own, but with little success. Then they came across Active Hands gripping aids and had “immediate positive impressions.” Shoshana explains that the Active Hands gripping aids produced instant success where the other aids had struggled. Initially, Yemina tried them out on her bike and walker and once she realised she could trust these aids to hold her safely, she rapidly became “more confident.” Now she could take part in activities that were previously such a struggle, and not only was she enjoying them, she could take part without help and with far better posture and alignment.
A few years on and Yemina is now the proud owner of several pairs of our small pink general purpose aids which she leaves with various pieces of equipment; ready for action. She continues to use them to hold onto her bike and walker handle bars and also uses them to grip the bar of her treadmill and various pieces of gym equipment at her school. These aids have become a “life saver”, enabling Yemina to exercise independently. Her mum explains, “[Yemina] uses her walker all day every day at school, so the fact that she can be in there on her own and using her legs is huge.” And the benefits extend to the whole family;
“[Active Hands gripping aids] have made a definite difference to her independence and well-being, in addition to giving me my hands back when taking her out for a bike ride or walk around the mall.”
Yemina’s ‘can do’ attitude embodies what we at Active Hands strive to help people to fulfil. It is so exciting to see what a difference the right product can make to people’s independence, well-being and ability to live an active life. It is also clear what an impact this level of independence can have on wider families and friends; whether its ‘hands-free’ time as you no longer need to hold onto walking frames, or better access to family activities such as bike-riding or strolling around the shops together. So what is it that you and your family would like to be doing together? Check out our wide range of products and see how we can help you to get active independently.
Paralympic sport has come a long way from its humble beginnings at the Stoke Mandeville spinal cord injury unit in England just after the Second World War. This small sporting event, which at the time used competition between those with similar injuries to assist the rehabilitation of wheelchair users, is now a worldwide phenomenon. The movement now boasts a 4 yearly event working in conjunction, and very much on a par, with the Olympic Games. In addition many of the individual sports have their own international sporting events governed by the IPC (International Paralympic Committee) and run separate international event calendars. Competitors in these events are often household names and on many occasions able bodied and para sports run events alongside each other as is currently happening with the IPC para athletics championship in London. The transformation of disability sports has been amazing as has its influence on the quality of the lives of disabled people in general over the same time frame. However in more recent years is the direction of movement for those involved in para sport the correct one? Is it time we had a serious and perhaps difficult conversation about who benefits and who doesn’t from how things have changed with Paralympic sport? Are we still helping those who the movement was set up to help? And while the success of the movement in general is a really good thing, do the inevitable commercial pressures of this success actually have some negative impacts on inclusion and participation of those with disabilities? There are a number of areas in relation to this that could be discussed, however I would like primarily to give my thoughts on what I see as the direction of travel of the Paralympic movement. Are we seeing those with more severe disabilities losing out to those with less severe disabilities? Is there enough representation for those who are much further from having fully working bodies than those who have smaller impairments and if so, why is this? I will move onto my thoughts around this subject later in the article but to begin with I think it might also be worth discussing another area – classification, to understand more about what is happening. Importantly I don’t want this article to be a criticism of the Paralympics and para sport itself, governing bodies within it or individuals (athletes or otherwise). What I do want to do is begin a discussion about where we think it should be going in the future. This discussion might be difficult to hear but I think it is one that ultimately needs to take place, and take place now.
Before I let you know about my thoughts on all this, a bit of background on me would probably help. I have a C5/6 incomplete spinal cord injury and I live in the UK. Over many years I have competed to a decent level in wheelchair rugby and wheelchair racing and I have also been involved in other disability sports. I can only speak from my personal experience and from knowledge gained from others I have met in that time. Although I have been selected to represent team GB in the past I want to make it clear I am not writing this out of frustration for not being selected for my national squad for any particular event – I wasn’t where I needed to be in the world rankings for my classification to achieve selection and I understand that.
Classification adjustments and the knock on effect.
Classification is always going to be a difficult area and will always have controversy around it. There has been some controversy regarding Paralympic classification in recent times. It is a situation pretty much exclusive to the disability sport movement and is there for a very good reason. It was designed to allow people of a similar physical ability to compete against others with roughly the same physical ability. It is not a perfect system and there will always be those who benefit from being at the top end of a particular classification bracket and also those who may find it harder as they find themselves in the lower end of that bracket. I have been participating in disability sport for well over a decade now. I am by no means an expert in classification so all I aim to do here is bring up some topics for discussion around disability classification. I will begin with some of my own thoughts and experiences of classification in the sports I have played over the years.
My view is that in both wheelchair rugby and track racing over the last few Paralympic games, those with more severe impairment have been squeezed out the bottom of the sports they love by different disability types and borderline classification calls gradually raising the bar of who they can actually compete with. My category in racing – T52 is a mixed disability classification in which athletes who exhibit similar muscle strength and movement compete together. In recent years the classification boundary has moved a little which has allowed athletes with different disability types but who still exhibit similar muscle strength to enter our category when they would previously have been in the category above us. Many of these new athletes are great athletes, nice people and good friends of mine. It is not their fault that they have been categorised the way they have and on the surface they exhibit very similar muscle activity to others in this classification. However when you look more closely there are other differences that are important in addition to muscle strength which means things are not necessarily a level playing field. For example those with a higher level spinal cord injury (a neck injury rather than a back injury) cannot elevate their blood pressure and heart rate to the same extent as a non spinal cord injured athlete with the same muscle strength. There is a direct relationship between athletic performance and elevation of blood pressure and heart rate. An athlete with the same body function and fitness but who’s heart rate and blood pressure is restricted due to their disability type will not achieve the same output as one who is not restricted in this way. I understand that athletes of all disability types also need the opportunity to race in a category that is appropriate for their disability. My concern is the knock on effect of adding more and more athletes to the top end of classification boundaries and how this affects those sports and who can compete in them in the long term.
I believe this has also happened in wheelchair rugby. When I began playing wheelchair rugby it was a sport nearly exclusively played by those with spinal injuries. In fact it was invented by quadriplegic wheelchair users in Canada as they found it difficult to take part in wheelchair basketball due to their lack of hand function and strength. Classification for wheelchair rugby players ranges between 3.5 and 0.5 points and a team is made up of 4 players totalling no more than 8 points. When I was first classified as a wheelchair rugby player I began as a 3.0 point review player which after a few years dropped to a 2.5 point player. If I was classified now I would most likely come out as a 2.0 pointer. The extent of my disability has not changed much in this time but the classification boundaries have slightly shifted. Many players who would previously have been considered “too able” to play are now playing as higher point players which has a knock on effect throughout the whole classification system. In many seemingly positive ways this makes the game look faster, more dynamic and exciting and adds to the diversity of which disability types can play the game but this also has negative consequences. These classification adjustments have meant that the previous high point players are now mid-point players, those mid-point players are now lower point players. The problem with this is that those who were previously the lower point players, the 1.0 and 0.5 pointers, the ones who struggle the most to find competitive sports to play, now struggle to compete at all. Where do they go, what sport do they play? This was a sport set up specifically for those who, through no fault of their own or lack of training, were unable to compete at basketball. Where do these dedicated athletes go in terms of sport when they are getting pushed out the bottom end of the sport that was designed for them? I wanted to highlight some of the issues I have noticed in classification as it has implications for Paralympic sport in general. It’s not an obvious and rapid change and some may say that as disabled athletes train harder and techniques and equipment improve this movement of classification boundaries will naturally shift slightly. However I disagree. I think it is more than this and I do believe it is a cause, or perhaps a symptom, of a trend in disability sport moving in this direction. In my mind the Paralympic movement was set up to give sport to those who could not play it with able bodied competitors. Those who had no chance to even play, yet alone compete with, able bodied athletes then had sports and organisations enabling them to do one of the major things they desired to do – compete, with others like them.
A shift in athlete recruitment.
I have noticed a shift recently towards sports finding people with minor impairments who are already playing alongside able bodied competitors and didn’t previously consider themselves “disabled” and recruiting them into para sport. Much as I fully welcome inclusion it seems like much more of this has been happening recently and I don’t think it is the direction we should be going in. Many sports seem more intent on finding people with very minor disabilities who are currently quite happy being involved in the sports they were already managing to take part in and making them great Paralympians. These people are already involved in sport and are active and healthy because of it. Whereas what I think should be happening is that the people who are currently struggling to take part in sport due to their disability are encouraged to participate and have opportunity to compete to a high level if they decide to and show the ability to do so. Much as there is value in elevating those with minor impairment to compete with others in similar positions, it really only serves to win medals and therefore funding for national squads. I don’t want to single out particular sports but as an example the recent British para rowing recruiting video did actually say words to the effect of “you may only have a slight impairment or not consider yourself disabled but you may still qualify for para rowing”. I completely see why this needs to be said as GB rowing wants to win lots of medals, as do other sports. However I am concerned as there are a limited number of sports and events at any Paralympic games. There are some sports and events that are for athletes with very minimal disabilities or impairments that many would argue are taking away possible events for those with more severe disabilities who are just simply not able to compete at all if their events are not included. Some impairments allow athletes to compete very easily with their able bodied counterparts and tough as the question may be, we need to ask if these sports should actually be included in a paralympic games? I am not an expert, and I understand this directly affects some athletes currently competing, which sounds like I am being unfair to them. However, in my mind if you have, for example, a minor upper limb amputation or your eye sight is affected but you can still see the lines on the track, you can still compete with able bodied runners (particularly over long distance), throw a javelin, or do the long jump. These athletes who are much less affected by their disabilities do often produce events that can look visually more exciting. The athletes look more like the stereotypical view of an able bodied Olympian. They are often much easier to sell to the media. Their bodies and the way they move are more similar to what an untrained able bodied viewer would be used to seeing in athletic competition. But those with a greater degree of impairment train just as hard, struggle to overcome the odds just as much and deserve as much, if not more, opportunity to demonstrate to the world their physical prowess in competition as anyone else. As new sports and new events fight their way into para sport and the Paralympic games, are we allowing too many sports and events for those with minor impairment? At every games there are limits to the amount of medals on offer and when a sport or event is added it doesn’t mean there are more events, it just means that some others get pushed out. Inclusion is great but when inclusion for those with minor impairment means fewer events for those with more significant impairment that actually becomes exclusion! That exclusion is also at the expense of those who should benefit from inclusion the most.
There is an understandable temptation for national sporting bodies to pick less disabled medal hopes over equally likely medal hope but more disabled athletes. It is unfortunate but true that it is easier and more cost effective to transport and accommodate the needs of someone with a minor disability than someone with a more severe disability. I believe that there are times when the full support they need is not given to athletes with higher disabilities levels because of cost implications. I believe this may be happening in developed countries national bodies when money is less of an issue, so is much more likely to be happening in places where finance for para sport is a larger issue. If you base funding on medals and you have limited resources to get those medals economics dictates you will spend those resources on the cheaper way to get medals. If there is equal opportunity for medals between 2 athletes, the “less disabled” athlete is the easier and cheaper one to select for the same medal opportunity. This sadly can be a more tempting prospect for National selectors. But when this happens it is at the expense of individual athletes with severe disabilities within all sports and also to the sports originally designed with them in mind. I am concerned about the lack of possibility for selection for those who have had the classification boundaries moved above them to let more able athletes in and other sports where lack of disability is what coaches are looking for rather than talent, ability and determination.
Do we need a change in emphasis?
It all seems to point towards national bodies scouting for the least disabled in a classification (which will always happen) but also the least effort in converting someone already competing in a sport, not realising their minor disability allowed them to be eligible, over helping someone who has a more severe disability but could be a great athlete to learn a new sport from scratch. It now often seems a bit like the “nearly able” are taking over Paralympic sport while the less able struggle to have events to compete in. I don’t believe it is a deliberate change of direction by the Paralympics but more of a slow slide in that direction. The Paralympics has been an awesome movement for positive change in the lives of disabled people, but I think we need to be aware of this slide and evaluate if it is helping to do what the Paralympics was initially set up to do. Is it helping to motivate and inspire to get active, those it was set up to help? If it is not being as effective at this as it should be, do we need to make some changes, as difficult as that may be, to readdress that balance? The success of the Paralympic movement itself should not be underestimated but has this success ultimately distracted us from its original aims?
Wheelchair racer and disability sport athlete,
Director of the Active Hands Company.
July 18th, 2017
In December 2002 José Maldonado, a dedicated husband and father of two, suffered a devastating intra-cerebral hemorrhage; a type of stroke caused by the sudden rupture of an artery within the brain. Unfortunately, like many stroke survivors, he experienced loss of function in both his lower and upper extremities, meaning he needed to use a wheelchair, struggled with aphasia, facial paralysis, and was overwhelmed by outside stimulation such as ambient noise. However, he was determined not to give up on his life, and after seeing what a profound effect his stroke had on his entire family he tried to find ways in which he could improve his quality of life and regain his independence.
Still with little hope, he committed himself to therapy 5 to 6 times a week with sessions lasting anywhere between 4 to 6 hours a day. He began to notice that even his effort to get better had an uplifting effect, not only on himself, but on his family as well. After much self-sacrifice and family encouragement, he began walking again and did not have to rely on his wheelchair or even a walking cane. He was able to resume activities that he once considered impossible such as driving, using a computer and eventually going back to work.
His only problem was, no matter how much he tried, he couldn’t exercise the way he wanted – with both arms. He was unable to open and close his affected hand. So for over 12 years he was limited in terms of the exercises he could do. But that all changed when he discovered Active Hands. Jose explains that his Active Hands gripping aid has, “changed, totally, his life for the better.” With Active Hands he finally can go to a regular gym like anyone else. And he has been able to go to a regular gym every day for two years now. He tells us, he is “in love with his Active Hands!”
José has dedicated himself to counselling individuals and family members, and even helped to establish a Stroke Support Group in Maryland USA. He also works with other stroke support groups throughout Maryland and volunteers for several stroke-related clinical studies. As a dedicated stroke survivor advocate he has worked with several organisations to prevent heart attacks and strokes. Their goal is to bring together communities, health systems, non-profit organisations, federal agencies, and private-sector partners from across the country to fight heart disease and stroke. They have also asked José to participate in their drive by sharing his personal story and knowing the importance of family health history as well as recognising stroke warning signs and symptoms.
He realises he was fortunate with regard to his recovery and tries not a deliver a message of false hope for stroke survivors, but one of encouragement and inspiration. He knows through his own experiences, that stroke victims can and do get better as long as they have encouragement from family and friends and are willing to commit themselves. He says they too will improve and find life after stroke.
His message is simple; “There is life after stroke and it can be a rich and fulfilling life. Don’t give up, it’s not the end – it’s only the beginning.”
In 2012, Brandon Beack was an incredibly active and talented teenager. In addition to showing real talent in music and dancing, Brandon was a highly aspirational gymnast, competing for Western Province in the South African championships. His sights were firmly set on selection for the Junior Olympics and he was training for four hours, six days a week.
However, a bad landing in training left Brandon with a complete Spinal Cord Injury at C6-C7. He was paralysed from the arms down, needing support with many aspects of his daily life and personal care. After ten weeks inpatient rehabilitation, Brandon was discharged and he and his family began to discuss their plans for the future. Determined to keep making progress and to regain his independence, Brandon set out on an intensive program of rehabilitation with a team of experts, including a personal trainer, body builder and his gymnastics coach. After 14 months, Brandon travelled to the Shepherd Centre in Atlanta, USA, where he had advanced rehab 3 hours a day for 6 weeks.
It was during his time at the Shepherd Centre that Brandon first discovered Active Hands gripping aids. Brandon began to use his gripping aids as an integral part of all his rehabilitation work and his Dad, Mark, describes his recovery as, “beyond amazing.” Five years on and Brandon still finds his gripping aids essential in enabling him to reach impressive goals in the gym, including lifting 22.5kg dumbells and even uses them to assist him when using his EKSO walking suit.
Not content in reaching his own ambitious goals, Brandon and his family began to plan how they could help others to gain access to state of the art rehabilitation equipment to enable them to make the kind of progress Brandon had experienced. In 2015 the ‘Walking with Brandon’ Foundation was unveiled and it now offers a ‘therapy and beyond’ program which has seen some impressive outcomes for its patients. Working in partnership with the University of Cape Town’s research department, the foundation is undertaking research into how recovery from spinal cord injury can be assisted by technology such as the EKSO walking suit. Their ultimate dream is for disadvantaged communities to have access to their rehabilitation program and world-class equipment, and to one day have their own facilities that can offer all kinds of therapies, equipment and support to those with neurological disabilities. If you would like to find out more about the work of the ‘Walking with Brandon’ Foundation, click on the image below to visit their website.
As for Brandon’s personal goals, he continues to dream big. He is currently training to represent South Africa in the Tokyo 2020 paralympics as well as completing a BA sports science with a major in sports psychology; a qualification he hopes will enable him to assist further in the work of the foundation. Alongside this, his ultimate goal; to walk again and to, “never give up.”
We were so pleased to hear of Brandon’s story. His determination and dedication, not only to his own rehabilitation, but to aiding that of others is very motivating and we wish the foundation continued success in their work to advance rehabilitation facilities and knowledge in South Africa. Hearing of how Active Hands has enabled people to reach beyond what they thought was possible is equally motivating for us! If you have a story to share about how your active hands aids have opened new opportunities for you, let us know at firstname.lastname@example.org.
At the beginning of the year, Active Hands were excited to be contacted by BBC Business Online who had heard about our business and were interested in meeting us and finding out about the work we do, as a part of a larger theme they were researching on disabled people working in business.
After a bit of a tidy round (and just a bit of worrying about what to wear!), we were ready to welcome the BBC and at the end of January, we met Jeremy Howell who came to our new offices to film an interview.
Jeremy was interested in finding out about our range of products and how they can help disabled people to lead active and independent lives, as well as the challenges and rewards of working in the business sector as a disabled person. It was great to be able to show him our new offices and to talk about a business that we are so passionate about. We loved demonstrating our products and describing the difference they can make to people’s lives. It was especially exciting to be able to demonstrate the pre-production version of our small item gripping aid, which we have been working on for some time now and are looking forward to bringing to the market this spring.
We are pleased that extracts from the interview have been published on the BBC news business page and may be aired as part of a BBC news 24 feature at a later date. To see our interview (and get a sneak preview of our small item gripping aid) find us on the BBC news page here.